State-Based Facebook Groups
In an effort to coordinate patient-to-patient information regarding rare diseases, the RDUF is creating rare disease community groups by state. We believe this will help those suffering from or caring for someone with a rare disease share the most important information available within each state. Most rare disease patients see several specialists. These groups will be a place to share information by the experts; the patients. We also encourage people to share events in their state. These groups are not only a way to coordinate our care, but they are a way to show our support for other rare disease groups. This is not my disease. This is not your disease. This is O.U.R. (Orphaned.Undiagnosed.Rare) disease. Rare Diseases. Be United!