State-Based Facebook Groups

In an effort to coordinate patient-to-patient information regarding rare diseases, the RDUF is creating rare disease community groups by state. We believe this will help those suffering from or caring for someone with a rare disease share the most important information available within each state. Most rare disease patients see several specialists. These groups will be a place to share information by the experts; the patients. We also encourage people to share events in their state. These groups are not only a way to coordinate our care, but they are a way to show our support for other rare disease groups. This is not my disease. This is not your disease. This is O.U.R. (Orphaned.Undiagnosed.Rare) disease. Rare Diseases. Be United!

Connecticut
Maine
Massachusetts
new hampshire

rhode island