“Here for Rare” Meet-Ups


The Rhode Island Rare Disease Community will hold a “Here for Rare” Meet-Up Thursday, January 16th at the Newman Congregational Church, located at 100 Newman Avenue Rumford, RI. The support group will be facilitated by Sandi Carter Brown. Meet-ups start at 7pm and will last about an hour and a half. These support groups are open to anyone suffering from a rare disease and their families or anyone caring for someone with a rare disease. We invite you to connect with others, share ideas and coping tips, or just listen. “Here for Rare” Meet-Ups are free. Newman Congregational is handicapped accessible. Enter the church through the door located at the end of the handicap ramp. Enter the elevator and press the LL button. We are down the end of the hall on the left in the lounge. Looking forward to seeing everyone there. The church has asked that we not bring food, but bottled water will be provided!