U.S. Senator Jack Reed
U.S. State Senator Sheldon Whitehouse
Congressman David Cicilline
Congressman Jim Langevin
Rhode Island Health Advocacy Forum
The Rhode Island Public Health Association (RIPHA) is a 501(c)(3) non-profit, tax-exempt, professional organization that works toward the advancement of public health. The vision of RIPHA is a safe and healthier Rhode Island and the mission of RIPHA is to influence public health policy and promote public health practice in Rhode Island.
World Rare Disease Day 2104
World Rare Disease Day 2013
On February 28, 2013, World Rare Disease Day, the Rhode Island Rare Disease Community held our “Rare Disease. Abundant Hope” Rare Disease Day Awareness Event at the Crowne Plaza in Warwick RI. Over 150 people came out to honor our three Rare Disease Heroes: Olivia Weltin, Leanna Scaglione, and Emily Hawkins. There was music and dancing, great food, a magician, and a photo booth.
Bay View Academy, in East Providence, RI worked hard to raise awareness and funds to support the rare disease community. Led by the amazing Jo-Ann Sine-Calise, a wonderful group of eight graders came up with the creative “Pair for Rare” campaign. Everyone in the lower school and middle school could participate by dressing as twins for a day. They also raised awareness and funds by passing out flyers and a donation bucket at school basketball games.
World Rare Disease Day 2102
On February 29, 2012, World Rare Disease Day, the Rhode Island Rare Disease Community held our first Rare Disease Day Awareness event. Over 150 people braved a blizzard to attend the event at Alpine Country Club in Warwick, RI. The event included keynote speakers Linda Burke and Rick Guidotti, a magician, music by Tricky Britches, great food and an opportunity for the rare disease community to come together.