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Op-Ed Providence Journal

More than 30 million Americans in this country live with a rare disease--about 100,000 right here in Rhode Island. My daughter, Olivia, is one of them.
rare disease new england

Health Check: World Rare Disease Awareness Day

By Barbara Morse Silva NBC WJAR Channel 10 - Apr 09, 2013 Walking…
a mother's love

A mother's love helps others

Bound by a mother's love and the desire to raise awareness in the community, three women whose children each have a rare disease have banded together and formed the Rare Disease United Foundation to make a difference for their children and other local families.