Rare Care Collaborative Project

Rare Disease United Foundation has implemented the Rare Care Collaborative Project, uniting rare patients and medical students for better care, at Brown University’s Alpert Medical School. Rare patients and parents will be part of a lecture series in which the patient will give a lecture on their rare disease. No one expects medical students to remember 7,000 rare diseases, but through this lecture series medical students will learn the vast knowledge the rare patient has with regard to their disease. Change for rare diseases must begin in the medical schools. We are grateful to Brown University for hearing O.U.R. voice. RDUF is continuing our effort to introduce this program in every medical school in the United States. This program will change how doctors view rare patients, help reduce diagnosis time, lead to quicker treatments and a better quality of life.

Rare Care Collaborative Project

Brown University Alpert Medical School

Application

If you are interested in participating in this program, please submit the application below. All applicants must have an understanding of the molecular biology and genetics of their disorder. Thank you so much for participating!

Rare Care Collaborative Project