DNA Day

On April 25, 2013, DNA Day, The Manton Center for Orphan Disease Research held a launch party for the Massachusetts Rare Disease Community at Children’s Hospital in Boston.

U.S. Senator Edward Markey’s Swearing-In Ceremony

On August 8, 2013, Sandi Carter Brown and Patricia Weltin were honored to attend U.S. Senator Markey’s swearing-in ceremony.

Markey, 67, a former U.S. representative, took the oath administered by Boston Mayor Thomas M. Menino during a ceremony attended by hundreds at historic Faneuil Hall in Boston.

Lens on Life

On November 16, 2013, Rick Guidotti from Positive Exposure came to The Manton Center for Orphan Disease Research to take pictures of our rare kids. The Massachusetts Rare Disease Community partnered with The Manton Center for Orphan Disease Research to put together this event. A team from Cambridge Biomarketing put the event together to make it amazing. There was face painting, a photo booth, a music corner, crafts, great food and our friend Rick Guidotti was on hand to take photos!