The Manton Center for Orphan Disease Research at Boston Children’s Hospital was created to develop new methods for understanding, diagnosing and treating unusual diseases and to apply this knowledge to make fundamental scientific advances with broad implications for human health. To reach these goals, Children’s joined in a partnership with The Manton Foundation to create a center devoted to understanding “orphan diseases” – genetic syndromes, immune system problems, errors of metabolism, neuromuscular disorders and other little-noticed but scientifically important disease processes.
Disability Resources is a list of helpful resources in Massachusetts for those with a disability.
INDEX addresses the information needs of people with disabilities. We collect and maintain information on a wide variety of programs, agencies, and individual providers in Massachusetts that have something to offer to people with disabilities. INDEX is a project of the Eunice Kennedy Shriver Center at the University of Massachusetts Medical School.
Easter Seals provides services to ensure that children and adults with disabilities have equal opportunities to live, learn, work and play. Easter Seals’ vision is that all people with disabilities are empowered to reach their full potential. Easter Seals services help people of all ages with all kinds of disabilities, at more than 100 sites in communities all over Massachusetts — individuals disabled through illness, accident or aging, as well as people born with disabilities.
The 17 Chapters of The Arc of Massachusetts work throughout the Commonwealth to provide services and support to individuals with intellectual and developmental disabilities – such as Mental Retardation, Down Syndrome, Autism, and cerebral palsy – and their families on a case-by-case basis. Use our Chapter by City/Town Directory to find your closest chapter to your town in Massachusetts.
The Bridge Center is a fully accessible 20+ acre campus located in Bridgewater, MA that offers Year-Round, Summer Camp, and Equine Assisted Programs designed for children, teens and adults with special needs. Formerly known as Handi Kids, The Bridge Center was founded as a 501(c)(3) non-profit organization in 1963 by the Knights of Pythias and has provided quality programming for 50 years. We offer opportunities to make friends, share experiences, discover abilities and uncover talents – building social, emotional and physical skills to promote full participation in the community.
The Disability Law Center (DLC) is the Protection and Advocacy agency for Massachusetts. DLC is a private, non-profit organization responsible for providing protection and advocacy for the rights of Massachusetts residents with disabilities. DLC receives federal, state and private funding but is not part of the state or federal government.
EK Shriver Center: With inspiration from Eunice Kennedy Shriver and her family, we pursue research, education, and service programs aimed at improving the quality of life for persons with intellectual and developmental disabilities and their families.
The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. We are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities.
The Genesis Fund was formed to provide funding for children with special needs. We strive to ensure these children, who often have multiple disabilities, receive not only expert medical care but also coordinated comprehensive care.
For over 40 years, the Institute for Community Inclusion (ICI) has worked to ensure that people with disabilities have the same opportunity to dream big, and make their dreams a fully included, integrated, and welcomed reality. As a leader not only in Massachusetts, but also nationally and internationally, ICI strives to create a world where all people with disabilities are welcome and fully included in valued roles wherever they go, whether a school, workplace, volunteer group, home, or any other part of the community
MAB’s Mission is to work with individuals with disabilities to eliminate barriers and create opportunities. Our experience allows us to forge strong community partnerships so that we can meet the pressing need for high quality services and programs and transform lives.
The Tourette Syndrome Association of Massachusetts is an all-volunteer, non-profit organization whose mission is to support the needs of families affected by Tourette Syndrome. Our goal is to advocate for individuals with TS, educate the public and professionals about TS, and promote awareness.
Massachusetts Deafblind Family Alliance:We are a grassroots group united to promote and protect the interests of our family members with deafblindness. We endeavor to be the voice of those who cannot speak for themselves. Massachusetts Government Portal to sites listing various Massachusetts government agencies, organizations, and resources.
Massachusetts Government Portal to sites listing various Massachusetts government agencies, organizations, and resources.
Special Olympics Massachusetts provides year-round sports training, athletic competition and other health-related programming for athletes with intellectual disabilities throughout the state.
New England Hemophilia Association is the leading organization in New England dedicated to empowering individuals and families with bleeding disorders and building local and region-wide communities for them by providing diverse information sources, dynamic programming, individual and legislative advocacy, and emergency financial aid.
The Parent-to-Parent Program brings together parents facing similar challenges in raising their children with special needs. We believe that sharing experiences provides strength and support to each other.
Prader-Willi Syndrome Association of New England (PWS) is a non-inherited genetic disorder which is most often associated with a random deletion of the 15th chromosome. It is estimated that PWS occurs in 1 in 10,000 births. It affects both sexes and is unrelated to race. The cause is, as yet, unknown.
The mission of Seven Hills Foundation is to promote and encourage the empowerment of people with significant challenges so that each may pursue their highest possible degree of personal well-being and independence.
Through support, challenge and opportunity, Triangle empowers people with disabilities and their families to enjoy rich, fulfilling lives. We are committed to helping the world recognize that we are all people with ability.
VSA Massachusetts is part of an international network of VSA organizations serving 35 states and over 50 other countries. VSA is affiliated with The John F. Kennedy Center for the Performing Arts in Washington, D.C. The letters VSA now reflect the Vision of an inclusive community, Strength in shared resources and Artistic expression that unite us all.