U.S. Senator Elizabeth Warren
U.S. Senator Ed Markey
Massachusetts Biotechnology Council
The Massachusetts Biotechnology Council (MassBio), a not-for-profit organization that represents and provides services and support for the Massachusetts biotechnology industry, is the nation’s oldest biotechnology trade association. Founded in 1985, MassBio is committed to advancing the development of critical new science, technology and medicines that benefit people worldwide.
Massachusetts Health Council
Massachusetts Health Council is a non-profit, non-partisan statewide organization of more than 150 governmental and voluntary agencies, consumer and advocacy groups, professional societies, and private corporations committed to improving and protecting the health of the residents of the Commonwealth.
World Rare Disease Day 2014
Hear O.U.R Voice Art Exhibit 2014
Massachusetts State House
World Rare Disease Day Panel Discussion 2014 & Shire Presentation
U.S. Senator Edward Markey’s Swearing-In Ceremony
On August 8, 2013, Sandi Carter Brown and Patricia Weltin were honored to attend U.S. Senator Markey’s swearing-in ceremony.
Markey, 67, a former U.S. representative, took the oath administered by Boston Mayor Thomas M. Menino during a ceremony attended by hundreds at historic Faneuil Hall in Boston.
Lens on Life
On November 16, 2013, Rick Guidotti from Positive Exposure came to The Manton Center for Orphan Disease Research to take pictures of our rare kids. The Massachusetts Rare Disease Community partnered with The Manton Center for Orphan Disease Research to put together this event. A team from Cambridge Biomarketing put the event together to make it amazing. There was face painting, a photo booth, a music corner, crafts, great food and our friend Rick Guidotti was on hand to take photos!