Patient Submission Form

The Beyond the Diagnosis Art Exhibit’s focus is the rare disease patient. Artists donate their time and talents to paint children living with a rare disease for this groundbreaking exhibit. The exhibit is traveling to medical schools, research institutes and hospitals around the globe encouraging the medical community to look “beyond the diagnosis” to the patient.

There are 7,000 rare diseases. At Rare Disease United Foundation our hope is to raise awareness of all 7,000 diseases through the Beyond the Diagnosis Art Exhibit. After just one year, the exhibit has already exceeded all of our expectations and reached millions through media coverage of the exhibit. This exhibit has been embraced by both the medical community and researchers as an important educational tool and is bringing much needed attention to rare diseases.

Beyond the Diagnosis Art Exhibit is not a fundraiser. All funding to support the exhibit come from corporate or private patrons. We are grateful to our patrons, artists and patients for continuing to allow this important exhibit to grow.

Applicants will not be notified of participation in the project until completion of their portrait. As all portraits are gifted, we give participating artists lots of time to complete a portrait. Occasionally, circumstances beyond anyone’s control lead to incompletion of a portrait. We feel that a completed portrait will guarantee everyone’s satisfaction. We appreciate your patience.

All applicants will be kept on file. There are 7,000 rare diseases and we need lots of help. Unfortunately, we can only cover so many per year. Thank you.

* Beyond the Diagnosis is currently only accepting applications for children 17 and under.

Please complete the Patient Submission Form below.

Patient Submission

In order to be considered, please be sure all *required fields on the submission form are filled in.
  • 3-5 paragraphs about your child or children. Please include information about your child's personality.
  • Drop files here or
    Accepted file types: jpg, pdf.
    Please optimize files before upload. Only PDF or JPG will be accepted.