Rare Disease Day 2016

The Abbott family, whose son, Aidan, has ectodermal dysplasia disease, stands in front of a painting of him that is part of the “Beyond the Diagnosis Art Exhibit,” an effort led by Rare Diseases United Foundation.

(NCATS photo)

Patricia Weltin of Rare Diseases United Foundation speaks with NIH Clinical Center Director John I. Gallin, M.D.

(Daniel Soñé Photography)

Ryder Abbott, whose brother Aidan has a rare disease, participates in the 2016 Rare Disease Day at NIH.

(Daniel Soñé Photography)

Rep. Joseph Crowley (D–NY), NCATS Office of Rare Diseases Research Director Petra Kaufmann, M.D., M.Sc., and Patricia Weltin of Rare Diseases United Foundation stand in front of a portion of a national rare diseases art exhibition on display at the NIH Clinical Center.

(NCATS photo)

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Patricia Weltin says that her efforts to shine a light on rare and undiagnosed diseases is best expressed in the words of the late Swiss artist Paul Klee: “Art does not reproduce the visible; rather, it makes visible.”