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Health Check: World Rare Disease Awareness Day

By Barbara Morse Silva NBC WJAR Channel 10 – Apr 09, 2013 Walking is a milestone for 2-and-a-half-year-old Dustyn Schifino. Dustyn was born with a rare disease called glutaric acidemia type 1, also known as GA1. He’s the only one in Rhode Island with this genetic disease. He can’t break down two amino acids: lysine […]

A mother’s love helps others

Bound by a mother’s love and the desire to raise awareness in the community, three women whose children each have a rare disease have banded together and formed the Rare Disease United Foundation to make a difference for their children and other local families.