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Dear Congress Patricia Weltin This story is not for the moms in the rare disease community because they are this story. This story is for the mostly old, mostly white, mostly men who sit in D.C. and decide who will and who will not get treatments. Dear Congress, My children are sick. My children will […]


PhRMA, the Pharmaceutical Research and Manufacturers of America, represents the country’s leading biopharmaceutical researchers and biotechnology companies. Visit Website: Phrma