1 in 10 Americans has a Rare Disease

There are 7,000 rare diseases
affecting 30 million Americans,
the majority of them children

Only 5% of the 7,000 rare diseases
have a treatment. There are no cures.

We are 30 million strong!

It's time to hear about rare!

Rare Diseases. Be United!

rare disease united collage

Beyond the Diagnosis
Raising Awareness Through Art

Welcome to Rare Disease United Foundation

Our mission is to build a strong rare disease community throughout the United States so that we may help to provide support and information to our families, raise awareness and advocate for our families.

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Million Americans have a Rare disease


Million people worldwide have a Rare disease


Rare diseases exist


Average number of years to diagnosis

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