1 in 10 Americans has a Rare Disease

There are 7,000 rare diseases affecting 30 million Americans,
the majority of them children

Only 5% of the 7,000 rare diseases have a treatment.
There are no cures.

We are 30 million strong!

It's time to hear about rare!

Rare Diseases. Be United!

Welcome to Rare Disease United Foundation

Our mission is to build a strong rare disease community throughout the United States so that we may help to provide support and information to our families, raise awareness and advocate for our families.

Beyond the Diagnosis

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30

Million Americans have a Rare disease

350

Million people worldwide have a Rare disease

7,000

Rare diseases exist

8

Average number of years to diagnosis

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