rare diseases united

There are 7,000 rare diseases

affecting 30 million Americans,

the majority of them children

rare disease united collage

Welcome to Rare Disease United Foundation

Our mission is to address the unmet needs of the rare disease community including raising awareness of rare diseases, reduce diagnosis time, reimbursement and other insurance issues, and relieving the isolation felt by those living rare.

Rare Disease United Store

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Million Americans have a Rare disease


Million people worldwide have a Rare disease


Rare diseases exist


Average number of years to diagnosis

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